KBG Syndrome Association Executive Team
Director of Development
Director of Family Support
Meet the Team
Brianna Dose, RN
Mother of five, whose youngest was diagnosed with KBG Syndrome. With over ten years of pediatric nursing experience, five of that in neurogenetics, Brianna hopes to help bridge the gap between families and medical professionals, creating relationships with rare families and create an organization dedicated to improving care for individuals with KBG Syndrome.
Judie Boss, LPN
Mother of three who has both a husband and child diagnosed with KBG Syndrome. Judie brings fresh perspective into living with KBG Syndrome as an adult while navigating the challenges of having a child with it as well. As a nurse she also helps families navigate the complex world of special needs parenting.
Elissa Dominguez, RN
Mother of one child diagnosed with KBG Syndrome in 2014. She has over 25 years experience as a registered nurse working with medically complex children and young adults and specializes in respiratory diseases, neurological disorders, brain injuries and Gastrointestinal complexities. With her personal and professional experience she offers support and hope to families in our rare community.
Julia Poole, LMSW, PMH-C
Mother of three who has a child diagnosed with KBG Syndrome. Julia is a licensed therapist, specializing in supporting neurodivergent children, teens, and adults. Julia is passionate about helping people navigate challenges while also recognizing and utilizing their strengths.