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There are many ways for you to get involved on a local, regional or national level. The connections you will make, and the lives you will change can truly make a difference. Volunteers like you are what make everything possible! If you have skills to offer or just have a love and desire to help the KBG Community please reach out to us at 

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Are you hosting a KBG event and want to share?

Email us at

kbg family gathering

June 8 2024


Northern Virginia (D.C Area) 

This KBG Family Gathering is being hosted by the Mid-Atlantic KBG Syndrome Group. If you are interested in attending please register below!

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KBG Syndrome Share Cards


KBG Days - JUNE 11th- 19th

What day is KBG Awareness day? Is it June 11th? June 19th? You may have seen both dates advertised in the past years.

So we decided...

Why not take this opportunity to expand awareness! We are kicking off KBG Awareness on June 11th and celebrating it until June 19th!

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