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Living with KBG Syndrome

A diagnosis of KBG Syndrome can directly impact future care and quality of life of those it affects. This is why it is important to get an appropriate diagnosis, learn about any recommended treatments or screenings, be prepared for possible surgeries and know when to take precautions. 

Even though living with KBG Syndrome requires multiple doctor appointments, regular monitoring, and special tests, you can live a long, productive life.

Getting Diagnosed

A KBG Syndrome diagnosis can often be made after a detailed clinical exam and patient history. Due to it's variable presentation genetic testing can also provide helpful information and confirmation of the diagnosis. 

Health Considerations

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