Hey There

Have you been frustrated by the lack of information out there on KBG Syndrome? Are you wondering how to start changing the world for those diagnosed with this rare genetic condition?

Participating in research studies can be a great way to start. Or donate towards active research studies taking place right now.

Note: The KBG Syndrome Association does not collect funds directly. We collaborate with researches to support their needs. All money donated goes directly to the researcher specified below so that you know exactly where your money is going and what they plan to do with it.