top of page

Donating for KBG

At this time the KBG Syndrome Association is not accepting donations. We do support and encourage donations to the following vetted Non Profit organization:

Every Link Matters

Darin and Mary Hunter set up Every Link Matters because they struggled with their own daughter, Emilee’s, KBG syndrome diagnosis on February 26, 2019. The charity was created to raise awareness and funds for children who have been diagnosed and their families who need help with medical and therapy expenses. Instead of using social media, they have decided to be the social media outlet and support for families like themselves who are on the KBG journey.

Every Link Matters, a 501c3 non-profit organization


KBG SaveTheDate (14).png
bottom of page