We are excited to share that the KBG Syndrome Association is now officially a nonprofit organization. This milestone marks an important step forward in our mission to grow, responsibly raise funds, support research, and create meaningful programs for individuals and families affected by KBG Syndrome.

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With this foundation now in place, we are looking ahead with great anticipation to hosting our KBG Family Conference in Fall 2027. This event has always been envisioned as more than just a gathering—it will bring together families, researchers, and professionals for a meaningful experience that includes a scientific symposium, educational sessions, sibling programming, and opportunities to connect as a community.

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Over the past year, we appreciate your patience and support as we worked through the process of becoming an official nonprofit. That time has allowed us to build a stronger framework to ensure this conference is impactful, well-supported, and truly centered around the needs of our community.

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We will continue to share updates as planning progresses and look forward to bringing everyone together in Fall 2027.

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Thank you for being part of this journey with us.